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Could I have Lupus??


Question: I often am fatigued and have been for many years, I would say extremely so. I DO NOT get butterfly rashes, however I do get hot cheeks, and often have small rashes on my body that lead to small sores. I do get swollen eyes, and have aches in the morning. Only my hands sometimes feel inflamed but not my legs. I have shooting pains in my wrists but I always thought I had carpel tunnel until I realized this is also a sign of lupus. I have had more than a few kidney infections in the past. . . but as extreme as all this sounds, I'm not chronically ill. I have a normal life and would seem healthy to others. I'm not sure if these symptoms could be Lupus because I'm generally not sick and Lupus seems so extreme. Any help/advice/suggestions would be great. Also, I don't have insurance but am going to look into getting tested at my local hospital.
Answers: Not all lupus patients get the butterfly rash or have skin involvement. I have SLE with organ involvement and do not get the rash.

You could have lupus, or a whole host of other things. Lupus is called the great imitator because it mimics so many other diseases. Rheumatoid arthritis and thyroid disease are two examples.

There is no single test for lupus. A diagnosis of lupus is made
1. based on symptoms
2. based on a variety of lab tests
3. when other diseases and disorders have been eliminated

It takes most lupus patients several years and several doctors before they are properly diagnosed. A positive ANA or antinuclear antibody test is only one sign of lupus, and can occur during other conditions-even pregnancy!
i would definitely get checked out because it sounds pretty possible. if your symptoms haven't worsened, it's possible that they won't and you will just have to find ways to cope with the disease as it is, assuming it is lupus. get 8-10 hrs of sleep every night, and take naps if you can. don't smoke, and exercise, as your risk of heart problems and bleeding is increased. hopefully you don't have it!
I have Lupus. Everyone's symptoms are different. The testing for this disease is complex too. If the doctor suspects you have Lupus, he will order an ANA (antinuclear antibody) test. If it comes back positive, it doesn't mean you have Lupus, it just puts Lupus on the long list of possibilities. A positive ANA can show up with many diseases.

The doctor will put your history together with blood tests and decide from there if you may have Lupus. There is no one test for Lupus. I had been struggling for 11 years before they finally decided that I had Lupus.

Lupus is when you have an overactive immune system. Your body begins fighting your own organs as if they were foreign objects. The doctor will usually prescribe immune suppressants to bring your immune system back to normal and out of overdrive.

Also, try to get insurance before you go to the doctor. If it is determined that you do have Lupus, most insurance companies will say it is a pre-existing condition, (meaning, you had it before you got the insurance) and they won't cover anything related to the disease.

If it is Lupus, I wish you luck, and hopefully you can get some relief!


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